Saturday, July 11, 2009
Sorry
I'm sorry that I haven't been on here awhile. I've been a little busy. I was gettin ready to go on vacation to Canada. So that was kinda hard. I can't really move around very good anymore. I'm dealing with it though. I talked to my brother Mike the other day. He said that his friends didn't really understand what was going on with me. So I'm gonna try to explain what I at least know. It all started in Sept of last year. Towards the end of the month I noticed that my left ear I couldn't hear as much as as I used to. So i went to stat care. They said it was probably pressure on the ear gave me a prescription. So I took it It didn't seem to do anything. So I just blew it off for awhile. Then I notice I woke up one day I couldn't put my hair up in a pony tail I didn't have the strength. That really was weird. Then I started losing muscle in my arms. and losing weight. I already was under my weight for my height any way. So my neck and back started hurting really ad. I thought maybe I'd go see a Chiropractor. It seemed to start working. My neck pain wasn't as bad. But I was getting worst. by Dec I lost 15-20 lbs everyone thought I was bulimic They were getting pretty upset with me telling me I should eat. I told them I was but I wasn't gaining any weight. I was having trouble swallowing and It made it difficult to eat. By New year's it was hard for me to even walk straight I was really dizzy and started seeing double. But I didn't tell anyone. I continued to hide this. My balance was getting worst too. My sister in law took me to the Emergency Room they said all my tests came back okay. That I needed to talk to someone about my weight. That was it. So I decided to just try to start eating more. Then I decided to get my eyes checked out cause I was havin trouble seeing like I used too. They were fine. Then I made an appointment to get my ear checked. The doctor did a hearing test on me. He come in asked me if I really did the test like I was lying about it. I said the results you got are what I could hear. Well he was really surprised about it. He said my test was really off the chart. So he suggested I get a balance test done. And said with my other symtoms that maybe I had a tumour on my brain to get a MRI. So went back to get a balance test. He couldn't do it cause I had an ear infection in my right ear. He seen how I was gradually getting worst told me I should just get an MRI. So scheduled that. Got that done he went over the results with me said he didn't see anything so. He recommended that I go see a neurologist. so he set me up with him. Got an appointment. Seen him he ran all these test on me. Cat Scans of my brain,neck, and chest. nothing showed up. Did a spinal tap. an Anti- Hu showed up. That he explained was associated with cancer mainly Lung. So that's why he did a chest cat- Scan. Nothing showed up. So he got me into mercy Medical. They said they were gonna look into my Bowels see if anything was there. They did a ct-scan on my belly.and were gonna do a scope to look into my throat and stomach. So they did the Scope. They said my stomach had Gastritis. was pretty adjusted. But never did a colonoscopy. Then they had 2 different Cancer Doctors look at me they said it didn't look like Cancer. They ended up. More less telling me to see a Physiologist that it was in my head. and I just needed physical therapy. Then my Mom and cousin took me to Cleveland Clinic Emergency Room. They looked over me said that I needed to see the neurologist team there. to have all my scans to take with me. I was to get more blood work and an EMG test done again. So we went to see her. Got all that done. She still had no clue what was causing any of this except it was all was related to this Anti Hu. Then she order this injection to be done 5X's and that didn't do anything. So this is basically where I'm at now. I can only walk with a walker. And my strength is still the same I used my right hand more so it's a little stronger. My balance is really bad anymore. My dizziness isn't bad like it once was but That could be I've learned to deal with it. My swallowing has gotten worst. I can't eat or drink like I was. So I've lost weight again down to 100lbs again. I'm trying to eat but I just can't It gets really frustrating cause I really want to pig out I just can't. I'm hanging in there that's all I can do. I'm not giving up. I want to fight this and beat this and I will I pray to GOD =. Everyday sometimes 3 to 4 times a day. I know He can help me He already has gotten me this far us together. We won't give up. I've gone to far to just give up now. I have three children that watch me. So I know that I'm a teacher to them. So I keep truckin along. I love them with all my heart and I will be here to see them grow up. And someday have a family of there own. I want to be a grandma someday. I will not miss that. Any who. I had more cat-scans done on Thursday. So waiting to see if that comes back with bad but good news. I hope they find something cause then I can know what I'm dealing with and fight this. So keep your fingers crossed PLEASE. Love all Take care.
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